of my highest consideration:
My name is Paula de Diego, I have 32 years and working in Film production and direction.
6 years ago I was diagnosed Fanconi anemia, a disease that my younger sister Juliet
Diego, already suffering from age 6.
My sister died almost 4 years ago due to complications of the disease
after spending 4 months hospitalized.
I am currently stable, and still am not under any treatment required
strong medication.
This is a disease unknown to most people because it is
very rare, and few people in the world The have approximately 3,000 in
worldwide.
So I decided to make a documentary about Fanconi Anemia, with
the purpose of interviewing both patients and relatives of people who have it
, as well as professionals who specialize in
this disease, and this material can be useful both
aa the patients, as susu families and doctors.
I have contacted several foundations, organizations and families of sick children
Commenting on this initiative, both in Europe and in
U.S., and the rest of the world.
I really would love to have the opportunity to travel and meet
disease experts.
would like to interview these people, and then to spread my
documentary, not only in film festivals and documentaries, but also through internet
, and the medical environment, and through all means possible
to people know about this disease, and they also serve patients
sufferers. I would also like
create a website, and there be published by the various conversations you have, to
Throughout the film, and also create an avenue of communication between
people who have it.
I want this to be a contribution that is useful for people who
want to know something about this disease, so well as those who already have
to know better what it is, and where to go, and the latest news
, etc, etc.
really like is a rare disease, people do not know of its existence
, and I want that to change.
For this reason, I am sending this letter for months all
institutions, and global health partnerships, and various sites and / or
companies that may could help raise funds for this documentary.
I is difficult to raise funds, but I have hope to travel to Europe and to carry out interviews.
Of course, very grateful for your attention
Sincerely atte. Paula
de Diego
indicito@yahoo.com
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